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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Anne,
Just what you need right now! NOT!
Hope the penicillin works without having to have anything else done.
Good luck for tomorrow.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Anne
Hope all goes well tomorrow
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Lots of love and hope it all goes better than you had hoped today xxxx
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Thanks all
Seems to be ok, lot softer, just need to keep having it dressed and take the penicillin
Obviously still can't use deodorant so just using baby wipes for the left armpit.
Anne x
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Annie,
just caught up here,
hope that it soon clears up for you now,
what a lot you have gone through.
take care,
Suzanne x
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Hi All
Had to give in to the RA again today, feel like a bag of poo to put it politely.
Abcess all cleared up now and was feeling fine, no pain from the RA for five days and I was really beginning to think that the MTX was beginning to work again.
OMG last night some of the worst pain ever, the right hand so painful no amount of ice would ease it, painkillers didn't work, finally eased off at 4.30am ish. Today feeling so lethargic and sorry for myself.
Seeing the rhummy on Wednesday and really feel that I need something else alongside the MTX, presently taking 20mg weekly, how do they decide what other drug to put you on?
Thanks for listening
Anne x
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Anne
What a blow, can understand how you feel its soul destroying when you think you ll just getting that much better and it all flares up again ( bit in the same boat ). Hope it all goes well next week and hopefully that dreadful pain doesn t rear its ugly head again.
Take care, Julia x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Anne It's rubbish isn't it? Just when you think things are easing up it's back with a vengeance! Both Julia and I seem to be joining you on this journey at the moment and I'm sure others are too. Try to remain optimistic, although it is difficult at times, improvement will come and you will feel better. There are several drugs that could be added to the mtx and the consultant will be able to consider what seems most suitable for you at the present time. It is very much trial and error and everyone is so very different. It may be that the mtx is no longer suitable and something else might work better. Do hang in there! Also, and importantly, you need to ensure you have adequate pain control to get you through the bad times. No one need suffer in pain as so many types of pain management are available. Ask the consultant for advice at your appointment. Hope things get better soon. Do keep us posted  Lyn x
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Hi All
Thanks everyone for support.
Went to the Rhummy today, he has increased MTX to 25mg weekly, spoke about steriods but I said I didn't really want to go down that path yet after he had explained to me about them and he was in agreement. He is pretty sure I have carpel tunnel in my right wrist. I had a nerve induction test last January before RA was diagnosed and it came back mild but I had had a steriod jab the week before the test so this could have had an incorrect reading. He is sorting out an appointment for me and I am going to go private if needed as my husbands firm have us in BUPA so all being well this could be done and dusted within the next few weeks.
Only concerns he has with increasing the dose is that I have had two nasty infections lately with the mouth and the abcess so will have to watch out for this.
Anne Bradshaw
x
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Rank: Advanced Member Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Annie,
hope the increase works for you.
i'm just reducing my Methotrexate from 20mg to 15mg as it's clear it's not working for me 7 months down the line ... and i am convinced it's really messed up my sleep.
but i have been on Hydroxy alongside it for a month now ... i have to give them both a chance wotking together for 3 months. if this fails then it's onto the Anti-TFN's which i know nothing about at present.
my pain isn't bad at all, my knee's are the worst with Osteo in both.
i had Carpel Tunnel procedure done 14 months ago, and although it helped reduce the numbness unfortunately it wasn't a great success for me, but i know it is for the majority ... trust me to be the awkward one !!
i understand your concerns about infection though ... i went down with a chest infection on Christmas Day and had to go to out of hours Emergency Doctor's for Anti-Biotics ... i feel this is definately one of the pitfalls of Methotrexate, although i do understand we all have to try it as the Bench Mark drug.
my last thought it did you discuss the Methorexate injections my Rheumy Nurse said they get into your system better and i have read lots on here take it that way..?
do let us know how you are getting on,
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Anne, I have just noticed your post again, didn't think you were still having problems. I really feel for you, it's a pity your consultant didn't start you off on the triple therapy, you may have had more success. My rhummy says everyone should be on this at the first onset of RA. It has been proven to be a better attack on RA hitting it aggressively, she is absolutely brilliant and so thorough. I do hope you get sorted out soon as I know the pain is no joke. Thinking about you and hoping you feel better soon. Take care Lorna x 
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